my husband has parkinsons and for the last few months has been getting more and more paranoid. he now thinks there is somebody living secretly in our house and it is me who has organised it. sometimes he appreciates that this is impossible but more often than not he just cannot see this. we are altering his medication to try and stop these thoughts but i don't think we are winning. we are waiting for an appointment for a ct scan to see if there is anything else going on, our gp wanted to admit him today but i'm trying to cope without doing this. any advice from any carers going through this???

Hi Soo,
so sorry about your situation. you find lots of support and advice on here,day or night you will always be someone to chat with even in the mddle of the night.im not to sure on meds,have you got a list this maybe useful to let others know and then try and advice you correct as best they can
chat again soon on the forum
regards

Hi Sooo,
I’m in a similar situation, my husband and I have been married for 55 years and everyone says we are joined at the hip. We are (were) devoted to each other, however my health has deteriorated so much my hubby went, as an emergency, into respite to give me time to recover from an illness I was suffering from. He had been in respite for 5 weeks and when I got stronger I visited him, he totally lost it, he was like a madman. He tried to head butt me (he had never ever been violent to me so this was completely out of character). He was shouting and yelling that I was having sex with other men, he said he was going to kill me, he was going to cut my throat, I was a **** a cow a whore (sprinkled with loads of bad language of course) It took three members of staff to restrain him and a doctor was called and he was admitted to a psychiatric unit for assessment. And to ‘tweak’ his medication since this could be a side effect of the PD drugs.

Before going into the nursing home he had male carers coming to put him to bed every night, he used to get up through the night and check every room I now realise the reason for this was that he thought the carers were staying overnight to have sex with me.

Several weeks later the situation is still not good, (still in the assessment unit,) sometimes when I visit he is fine, affectionate and loving, telling me he loves me and wanting to hug me. Other times (like yesterday) he is just the opposite, he stares at me with hatred in his eyes, still accusing me of having sex with other men i.e. two black men, an ex pitman an ex policeman to name but a few. No matter how much I try to reassure him, he says he knows its true and I have put him in there so I can be free to do what I like.
To make matters worse there is a lady patient there who thinks he is her husband and is always making advances to him, the staff try to stop it but can’t watch them 24 /7 he now thinks she is his ex wife and they are always walking together arms around each other or holding hands. This is very hurtful for me, I get nothing but hatred and abuse and as soon as he sees her his face lights up.
I am trying my best to cope but I am in floods of tears most of the time.
brown eyes (swollen brown eyes)

Dear sooo & browneyes. I cannot begin to imagine how you must be feeling. I sincerely hope that a change of medication will help your o/h's. Perhaps a very naive idea, but could you request a second opinion re your o/h diagnosis & treatment? I wish you all the best

Hello Sooo and Browneyes - I am really saddened when I read both your posts and just cannot imagine how you both must feel. It just brings home how powerful some of this pd medication is. I do sincerely hope that both your o/h's get their medication sorted and things settle down again.

Thinking of you both
Take care
Lizzy xx

Hi annebernadette and lizzy p,

Thank you for your kind comments, the doctor in the unit my husband is in, is liaising with my husband’s PD specialist who is a top researcher of the disease.
My daughter and I have a meeting with the psychiatric team of doctors this afternoon at the unit he is in, and I hope to hear that they are trying a change of medication.
Best wishes to everyone on the site.

All I can say is you are doing your best and remember to look after yourself. Really sorry to hear about it.

Hi Sooo and Browneyes
I am really sorry to hear about both of your situations. I'm sorry that I can't give any advice but I just wanted you to know that my thoughts go out to you both and I hope that there is help for you and your o/hs soon.
x

Hi everyone,
Went to the unit my husband is in to discuss his progress. Whilst waiting to see the doctor my o/h wanted to go to the toilet, when I was bringing him out, the woman patient who is fixated with him was outside the door and moved forward and kissed him full on the lips, two nearby nurses pulled her away and she started to shout and yell. The doctor said they were going to try a small daily doze of Quetiapine she said this would suppress his sexual urges and would stop the delusions he has about me, I guess its worth a try. I told her that the female patient was the instigator and it would be difficult to assess him because he was just responding. She said they would try to keep her away from my o/h.
Best wishes to all.

That must have been hard for you to witness browneyes. And yes, my immediate reaction was - this lady has a problem & they are going to medicate your o/h? But we have to have some trust & at least both you & he are in a safe place. All I can do is send you my very best wishes