Thank you Vivian for your very helpful reply , please keep going on and on , lol ,
I go on and on for britain since Parkinsons came to live with us . How on earth did anyone manage before the internet . It's been a mine of information to me in supporting my husband ..

You mentioned a hospital bed . The district nurse has place a request for one for my husband but I think it will take quite a while and it's why I have considered purchasing and ajustamatic bed myself possibly two singles . He likes me in the same room and I worry in case I didn't wake . Do you mean a waterproof baby's mat . I am using those silly little small ones . Trouble is do they make you sweat more .

Like you we have tried lots of different chairs etc and they don't come cheap . His latest rise and recline is most uncomfortable . the base is metal and the cushioning very poor .. It's not until you get it home and sit for longer periods that you can tell .

I am sorry that you are unable to have your husband at home anymore . ( but I do understand ) Each case is different , fortunately although not perfect my husband behaviour is fine , obviously can be frustrating , we have our moments but manage to talk it over and get back on an even keel . SO FAR )

He has been seeing a care of the elderly consultant since day one . He keeps saying that my husband is doing ok , he should come and live with us for a few days lol. They seem loathe to try too many different drugs my husband is 78 and has bee n having nightmares . Only medication he has tried is Sinemet plus and now the Rotigotine Patch . also low dose Amitriptyline at bedtime . His mobility is very poor Stiffness and balance /only manage a few steps at a time . I cannot honestly say the medication has been that helpful really , of course you cannot tell unless he stops taking them ?

So far I keep pretty well except I walked into a post today and saw stars!!!.

Please keep posting Vivian and take care yourself ..

Sorry Not been helpful that should read

hello jonnie,

many thanks for your reply and kind words, I feel that you may want to wait for a hospital bed as they rise up/down as well as the head and shoulders they also can rise at the foot end which is very useful if your husbands legs should swell. the ones you buy are about £1200-1500 pounds for a single and you may find that you can only use them for a short while. The bed mats I was thinking of are Huggies Dry nites for children but they may not be suitable for you. I can understand your husbands consultant being careful with the meds, that's the trouble with this rotten disease some things you just can't sort out.
I hope you feel better after walking into the post, I have had a lot of pain today so I have spent the day doing a few labels for my husbands clothes, I hope to be able to visit him tomorrow, he is and hour away.
best wishes
vivian

Hello Vivian

It's really good of you to pass on this really helpful advice. I certainly hope my husband's drug regime will be improved after the next consultation which luckily is fairly soon. As you say the long period between appointments is awful when the condition changes quite noticeably. Did you have access to a PD nurse and if so was that helpful?

If things can't be improved then maybe a hospital bed might be a possibility. Useful to know about the Ikea sheets.

We have got the carelink button which gives me some peace of mind when I go out. I agree with you that anyone who is older living on their own would be wise to have one.

Thanks again and best wishes.

This information from everyone on poor mobility at night has been most helpful to us. My husband is suffering from having difficulties both getting into an off the bed and turning at night. We had thought he might need the use of Madopar dispersable tablets and will be in touch with our pd nurse.

Hope you had a good visit to your husband today Vivian .

Hello Jonnie,

Yes the visit today was okay thankyou, I am always on tenderhooks as my lovely husband has really bad behaviour problems sometimes, I am a 60's music lover as is my husband and I always play loud music on my trips up and down the motorway, I play a lot of Rod Stewart and he was later than the 60's but I thank him for getting me home without crying all the way, it doesn't get any easier really and when you end up looking for everything from toothbrush, combs and about everything else you can think of it gets very frustrating, especially as he was always so tidy.
On another subject yes we did have a pd nurse and our consultant was very good but he is under another area and I must say it is nothing like as good.
Please everyone look on the forum or ask about aids or others thing that can be helpful as you can spend a lot of money and not get the benefit.
I must say since I have come onto the forum as an ex carer I appreciate the chats as it is very hard to suddenly be on your own after 44years together, but it makes me quite sad to think of all you young ones still having the same struggles as we did all those years ago.
I hope you have a good day tomorrow
best wishes
vivian