Wales campaigning
We campaign in Wales to make sure that the voices of the 6,000
people with Parkinson's in Wales, and
their families and carers, are heard in the National Assembly and
Welsh Government.
Our current focus is on promoting the value of Parkinson's
nurses and showing how they help save the NHS money.
Tell your Assembly Members about the importance of Parkinson's
nurses
As part of our Fair Care for
Parkinson's campaign we're focusing on promoting the impact of
Parkinson's nurses in Wales.
Use our simple email template to tell your Assembly Members how
important Parkinson's nurses are.
Parkinson's nurses are specially
trained to provide expert care and support to people with
Parkinson's.
We've produced a report - Parkinson's
nurses - affordable, local, accessible and expert care. A guide for
planners in Wales.
The report demonstrates the contribution that Parkinson's nurses
in Wales make to people affected by Parkinson's and their cost
effectiveness to the health service.
Image right: Hywel Griffiths, who has Parkinson's
Other actions you can take
Write to your Health Board and the Health Minister
Write to your Health Board and/or the Health Minister to tell
them about the importance of Parkinson's nurses. Address details for
Health Boards in Wales
You can adapt the template letters to include your own
experiences.
Add your comments to our map
Add your comments to our map and
help us show what a difference Parkinson's nurses make across the
whole of the UK.
Tell us what your Parkinson's nurse means to you. Or tell us why
you need one.
Why we need your help
Not all people with Parkinson's in Wales can access a nurse. In
some areas people have no access at all. In other areas the service
is limited due to high demand.
Not having enough nurses for the Aneurin Bevan area means that no one is there to offer advice and support when I need it most.
Mike Backhouse, who has Parkinson's
Jenni's nurse is a constant support
Jenni McCabe has Parkinson's, lives in Newport and has access to
a Parkinson's nurse:
"I don't believe I would be as well and mobile as I am without
the services of my Parkinson's nurse. She has been a constant
support during the 10 years since my diagnosis."
Mike lives in the same area but can't access a nurse
Mike Backhouse has Parkinson's and also lives in Newport:
"Not having enough nurses for the Aneurin Bevan area means that
no one is there to offer advice and support when I need it
most.
"I hope that the Welsh Government takes notice of this
campaign and realise how important it is to have equal access to
Parkinson's nurses throughout Wales."
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Other ways to get involved
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