Wales - policy and campaigning
We campaign in Wales to make sure that the voices of the 6,000
people with Parkinson's in Wales, and
their families and carers, are heard in the National Assembly and
Welsh Government.
People's NHS consultation
The Welsh Government have launched a
consultation – the People's NHS (PDF
95KB) - on how the Government, the NHS and the public can
work better together on improving health and health services.
It proposes the development of a 'compact' with 2 parts.
Firstly, an evolving agreement about what are the responsibilities
of the Government, the NHS and people across Wales.
Secondly, an ongoing discussion about how people can play a
greater part in managing their own health and improving health
services in Wales, and how the Government and NHS can help that
happen. The consultation document is an invitation to start a
discussion about how best to get the relationships right.
If you have any questions please contact Aileen Napier,
Wales Manager on 0844 225 3785 or email rm.wales@parkinsons.org.uk.
Mental Health Strategy consultation
'Together for Mental Health' sets out the Welsh Government's
ambitions for improving mental health and their vision for 21st
century mental health services.
It reinforces the need to promote better mental wellbeing among
the whole population and address the needs of people with mental
health problems or a mental illness.
The focus of the strategy is to improve outcomes for service
users and their families using a recovery and reablement
approach.
For more information please contact Aileen Napier, Wales
Manager on 0844 225 3785 or email rm.wales@parkinsons.org.uk.
Social Services bill consultation
New proposals to reform social services in Wales, including
giving people more control over the care they receive and increased
rights to assessments of their needs have been announced by the
Welsh Government. Proposed
legislation will:
- allow Welsh Ministers to consider extending the range of
services available by direct payments, meaning people will have
more control over the services they use
- introduce national eligibility criteria and ensure people are
assessed on what they need, rather than just on what services are
available locally
- introduce portable assessments, which means people will be
entitled to similar services if they move from one part of Wales to
another without having their needs re-assessed if they haven't
changed
- require local authorities to provide information to carers on
their rights and the services available to them in their local
areas
- overhaul workforce regulation
The consultation
on the proposals has now closed.
For more information please contact Aileen Napier, Wales
Manager on 0844 225 3785 or email rm.wales@parkinsons.org.uk.
Assembly inquiry into Residential Care
The National Assembly for Wales' Health and Social Care
Committee are conducting an
Inquiry into Residential Care for Older People.
Our
response to the Inquiry into Residential Care for Older People
(Word, 255KB)
The inquiry looked at a range of aspects including:
- how people enter residential care and the availability of
alternative community services
- the staffing issues of residential care provision, including
the right skills mix and access to training
- the experiences of service users and families
- quality of residential care services
- effectiveness of regulation and inspection arrangements
To find out more please contact Aileen Napier, Wales
Manager on 0844 225 3785 or email rm.wales@parkinsons.org.uk.
Tell your Assembly Members about the importance of Parkinson's
nurses
As part of our Fair Care for
Parkinson's campaign we're focusing on promoting the impact of
Parkinson's nurses in Wales.
Use our simple email template to tell your Assembly Members how
important Parkinson's nurses are.
Parkinson's nurses are specially
trained to provide expert care and support to people with
Parkinson's.
We've produced a report - Parkinson's
nurses - affordable, local, accessible and expert care. A guide for
planners in Wales.
The report demonstrates the contribution that Parkinson's nurses
in Wales make to people affected by Parkinson's and their cost
effectiveness to the health service.
Image right: Hywel Griffiths, who has Parkinson's
Other actions you can take
Write to your Health Board and the Health Minister
Write to your Health Board and/or the Health Minister to tell
them about the importance of Parkinson's nurses. Address details for
Health Boards in Wales
You can adapt the template letters to include your own
experiences.
Add your comments to our map
Add your comments to our map and
help us show what a difference Parkinson's nurses make across the
whole of the UK.
Tell us what your Parkinson's nurse means to you. Or tell us why
you need one.
Why we need your help
Not all people with Parkinson's in Wales can access a nurse. In
some areas people have no access at all. In other areas the service
is limited due to high demand.
Not having enough nurses for the Aneurin Bevan area means that no one is there to offer advice and support when I need it most.
Mike Backhouse, who has Parkinson's
Jenni's nurse is a constant support
Jenni McCabe has Parkinson's, lives in Newport and has access to
a Parkinson's nurse:
"I don't believe I would be as well and mobile as I am without
the services of my Parkinson's nurse. She has been a constant
support during the 10 years since my diagnosis."
Mike lives in the same area but can't access a nurse
Mike Backhouse has Parkinson's and also lives in Newport:
"Not having enough nurses for the Aneurin Bevan area means that
no one is there to offer advice and support when I need it
most.
"I hope that the Welsh Government takes notice of this
campaign and realise how important it is to have equal access to
Parkinson's nurses throughout Wales."
Carers Strategies (Wales) Measure 2010
The Carers Strategies (Wales) Measure 2010
received Royal Assent in November 2010 and is a key step forward in
providing support to carers. The measure will place new duties on
the NHS and local authorities in Wales, to work on their own or in
partnership, to prepare and publish a carers' strategy.
The Welsh Government has launched a consultation on draft
regulations and guidance to support the implementation of this
measure. The regulations and guidance aim to address the gaps in
provision of services for carers, and to ensure consistent
standards.
Our response to the Carers
Measure consultation (Word, 237KB)
White Paper on social services published
The Welsh Assembly Government has published a White Paper on
social services -
Sustainable Social Services for Wales: A Framework for
Action - in February 2011.
The paper puts in place a framework for meeting the challenges
facing social services in the next decade and beyond. And it sets
out priorities for action.
It aims to reshape and refocus social services in order to
ensure that they remain strong, and can continue to meet citizens'
needs and aspirations.
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