Welcome: Getting started on the forum
Welcome to the Parkinson's UK forum.
The forum community is here for people affected by Parkinson's. This includes people with
Parkinson's, friends, carers and families.
Community members share information, experiences… and sometimes
a virtual cup of tea.
Introduce yourself. We're waiting to meet you
Our forum community is here for people affected by Parkinson's.
This includes people with Parkinson's, friends, carers and families.
The 'Meet and greet' section gives new members an opportunity to
introduce themselves and meet others.
You can write a little about yourself and why you're on the
To introduce yourself, go to the
'Meet and greet' section and click on 'New
Have you signed up to receive private messages?
If you've signed up to receive private messages, please be aware
that this operates through email.
This means that when you send a private message to another
community member, your email address will be visible to them.
If you would prefer not to share your email address, you can
stop receiving private messages by changing the settings under 'My
Alternatively, you can create an email address specifically for
use on the forum.
Parkinson's UK can't be responsible for the content of private
messages sent between community members.
A few things to remember
By signing up to the forum, you agree to our forum terms and conditions.
Take a few minutes to read them before you begin.
By signing up to the forum, you agree to our forum terms and conditions. These set out the
legal obligations that we all must abide by. Take a few minutes to
read them before you begin.
If there are rules that you do not understand, ask us and we'll
Now, be sure to review the forum
guidelines. This sets out how we relate to each other on the
forum. It is also a guide to how you can expect to be treated
If you see a post that you feel breaches our rules, report it to
You can do this either by sending a message to firstname.lastname@example.org or by
clicking on the blue 'Report this post' button at the upper
right-hand corner of each message.
Next, see what others are talking about
You can see the ongoing conversations in a number of ways:
- Click on 'Forum
home'. From here you can see all the sections of the
- Click on 'Latest
activity'. From here, you can see conversations posted in the
last 12 hours. In the upper right-hand corner, you can change this
time frame to periods of 1 hour to 48 hours.
- If you have a particular question or you're interested in
a specific topic, try 'Search the
forum' on the upper left-hand side.
Is there a topic you're interested in?
Use the 'Search
the forum' facility to find previous conversations
about your topic.
Ready to post more?
There are 'sticky' posts for each section of the forum.
They provide important information about each section and where to go for additional help.
There are a number of forums including
About the forum,
Carers, friends and family and more.
It is worth taking a look at the 'stickies' about each
You can do this by going to the forum and clicking on any
section. At the top, you will see a post with the word 'sticky'
Stickies are introductory posts that stay at the top of the
They provide important information about the various sections
and where you can go for additional help.
Abbreviations and acronyms
To help you get started, here are some terms that are commonly
used on the forum:
- ASAP - as soon as possible
- DA - dopamine agonist
- dx - diagnosed
- GP - general practitioner
- ICB - impulsive and compulsive behaviour
- OH - other half
- meds - medicines, medication
- neuro - neurologist
- PD - Parkinson's disease
- pls - please
- PwP - people with Parkinson's
- SN - substantia nigra
If you ever have a question or want to contact us, email us at
click on 'Contact the
community team' on the left-hand forum menu.
Find out more about the forum