Hello,
My husband (82), who is a lot older than me (20 years older!), was diagnosed with Parkinson's about three years ago but it is obvious, with hindsight, that he has had it for a lot longer than that. I am finding it increasingly difficult to cope with his moods and it is becoming almost impossible to speak to him without him flying off the handle and accusing me of starting arguments! For example, he will watch 'fly on the wall' police programmes over and over again, swearing blind he hasn't seen them before, and when I point this out, he gets angry and storms out. I try not to say anything but it is causing me a lot of stress. I am disabled myself and feel so alone. All my friends say what a lovely man he is (he is really but this illness is changing him?) and say I must be exaggerating. None of my family can see anything wrong and think it must be all my fault!
He also has Addison's disease which doesn't help the situation. He won't let me go in to see his GP with him but he is waiting to see the neurologist again, though we could wait a long time, and then I will insist I go in with him. The trouble is that he always presents himself impeccably when he is out, it is just when he is at home here. I know it must be so frustrating for him and I include him in anything I do but it is all making me so ill now and I just don't know what to do any more.
Does anyone have any suggestions for coping mechanisms? I do go to my own groups once a week but I am always worried about him at home. He forgets things, like leaving the gas cooker on, or putting things in the microwave with no liquid.
I am sorry this is so long, I could write so much more, but I have been in tears after another outburst from him. Thanks for reading. It really does help to write things down.
Maggie