Karen Rose - diagnosed with Parkinson's at 39

Karen Rose, 47, from Bristol, experienced Parkinson's symptoms from the age of 34 and was diagnosed at 39.

Waiting for the correct diagnosis

"My dad first noticed something was wrong on holiday, when I couldn’t swing my arm properly.

"The doctors initially thought I had repetitive strain injury or Multiple Sclerosis - it took them more than 4 years to diagnose me with Parkinson's.

"I was devastated. My first thought was that I'm not old enough - that it's a condition for old people. I was very depressed when I realised that it would be with me for the rest of my life.

Meeting young people with Parkinson's

"The nurse put me in contact with my local Parkinson's UK branch. I was quite reluctant at first, as I felt too young, but I met others nearer to my age.

"Having people to talk to who are going through the same symptoms is so important, as most people just don't understand.

"As young onset representative for the branch I organise social events for the younger members. Our partners and carers also come along as they need the support too and are able to talk with other carers.

"We also have contact numbers for newly and not so newly diagnosed to share their thoughts, anxieties and concerns.

"Parkinson's UK has helped give me support and guidance through meeting others - we support each other in coping with everyday life.

"We just have to get on with it and be positive."

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