Karen Rose - diagnosed with Parkinson's at 39
Karen Rose, 47, from Bristol, experienced Parkinson's symptoms from the age of 34 and was
diagnosed at 39.
Waiting for the correct diagnosis
"My dad first noticed something was wrong on holiday, when
I couldn’t swing my arm properly.
"The doctors initially thought I had repetitive strain injury or
Multiple Sclerosis - it took them more than 4 years to
diagnose me with Parkinson's.
"I was devastated. My first thought was that I'm not old enough
- that it's a condition for old people. I was very depressed when I
realised that it would be with me for the rest of my life.
Meeting young people with Parkinson's
"The nurse put me in contact with my local Parkinson's UK branch. I was quite
reluctant at first, as I felt too young, but I met others nearer to
"Having people to talk to who are going through the same
symptoms is so important, as most people just don't understand.
Having people to talk to who are going through the same symptoms is so important, as most people just don't understand.
"As young onset representative for the branch I organise social
events for the younger members. Our partners and carers also come
along as they need the support too and are able to talk with other
"We also have contact numbers for newly and not so newly
diagnosed to share their thoughts, anxieties and concerns.
"Parkinson's UK has helped give me support and guidance through
meeting others - we support each other in coping with everyday
"We just have to get on with it and be positive."
Share your experiences of living with Parkinson's
discussion forum is for people with Parkinson's, their carers,
family and friends to chat and share experiences.
Everyone affected by Parkinson's is welcome to join.