Helpline: 0808 800 0303

Carers - real life stories

Providing care can be challenging and stressful, but there is support available:

  • Our information and support workers offer one-to-one information and emotional support to people with Parkinson's, their families and carers.
  • Our Mali Jenkins Fund provides financial assistance for respite breaks for carers.
  • Our carers' section has more information about benefits, grants, work, courses and details for other sources of support.

Below, carers share their experiences with us.

Eleanor Meikle

Eleanor tells us about giving up work to take care of her husband and how support from her local Parkinson's UK group helped her cope.

Michael Muskett

Michael cares for his wife who was diagnosed in 1972. He tells us about the effect Parkinson's has had on their lives and careers.

Denise Maule

Denise shares the stress and guilt she has felt while taking care of her husband and tells us how she found out about respite breaks and other support available for carers.

Valerie Crawford

Valerie tells us how caring for her husband since he was diagnosed with Parkinson's has turned her life upside down.

Share your experiences of living with Parkinson's

Our online discussion forum is for people with Parkinson's, their carers, family and friends to chat and share experiences.

Everyone affected by Parkinson's is welcome to join.