What should I tell my family and friends?

 

Parkinson's does not just affect the person with the condition. Partners, family members and friends also live with Parkinson's and their individual circumstances will determine how they are affected.

 

Roles within the family may gradually change as the condition progresses. Discussing these changes within the family will help make things easier. Even if you are a naturally upfront sort of person, explaining Parkinson’s to people that you meet in everyday situations can be daunting.


How and what you decide to tell others will depend on your relationship with them, but here are some ideas.

 

Be honest. Your family and friends may sense there is something wrong, and pretending otherwise may not necessarily re-assure them. You may be closing down an important source of support for you by not asking for help. Talk to your doctor, our helpline 0808 800 0303 or with a counsellor at an organisation such as Relate

 

One of the best sources of support can be talking to other people who are going through the same thing. If you can get your own thoughts in order, it will become much less difficult to explain things to new people that you meet.

 

To find out if there is a local branch or support group in your area, call our helpline 0808 800 0303 or visit the Find a local branch or support group section of this website.

 

You may also find support and advice by chatting to others on our forum

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