Results of our members' survey: Life with Parkinson's today - room
for improvement
We launched the results of the largest ever survey of
people with Parkinson's and
their carers in April 2008 in our report 'Life with
Parkinson's today – room for improvement'.
The report contains
the key findings relating to the following areas:
- health care services from diagnosis onwards
- information needs of people with Parkinson's
- education of professionals
- support for living day-to-day with Parkinson's
- the impact of Parkinson's upon carers
Insight into life with Parkinson's
The survey was completed by more than 13,000 of our members, and
provides a significant insight into all aspects of life with
Parkinson's.
The report highlights inconsistencies in access to specialist
care across the UK. And it shows that many carers are not receiving the information or
support they need.
More broadly, the survey has increased our understanding of the
needs of people living with Parkinson's. It will inform our work
and development as the leading organisation for people with
Parkinson's in the UK.
Agenda for change
The survey clearly defines the agenda for change for people with
Parkinson's, their carers and families.
We call on health and social care providers to engage with us to
understand what their local residents told us and work with us to
address the gaps that they highlighted.
We call on researchers to use the range of information that we
have gathered to accelerate the pace at which we can find better
treatments and, ultimately, a cure for Parkinson's.
And we call on everyone to support us as we drive forward
progress and change on the issues highlighted by the thousands of
people living with Parkinson's who took the time to complete our
survey.
Download report and summaries
Life with Parkinson's today –
room for improvement (PDF, 939KB)
To order a copy of the report, email pr@parkinsons.org.uk or phone
020 7963 9370.
Additionally, country summaries are available. To order a free
copy of the findings that are relevant to where you live, email
pr@parkinsons.org.uk
or phone 020 7963 9370.
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