Impulsive and compulsive behaviour as a side effect of Parkinson's
medication - our policy statement
Find out what we believe about impulsive
and compulsive behaviour as a side effect of Parkinson's
medication.
This policy statement has been developed with advice and
guidance from people affected by Parkinson's, health and social care
professionals and other experts.
What do we mean by impulsive and compulsive behaviour?
My Parkinson's drugs turned me from an occasional bingo-goer, to somebody who amassed tens of thousands of pounds of debt through compulsive gambling.
Patricia, person with Parkinson's
Impulsive behaviour is when a person can't resist the temptation
to carry out certain activities that could lead them to harm
themselves or others.
In many cases, this behaviour is out of character.
Compulsive behaviour is when a person has an overwhelming drive
or urge to act in a certain way, often repetitively, to reduce the
worry or tension that they get from their drive or urge.
Some people with Parkinson's who take dopamine agonists have problems controlling
compulsive or impulsive behaviour.
It can also affect people taking other
Parkinson's drugs.
What we believe
We believe that no one affected by Parkinson's should have
their lives ruined by impulsive and compulsive behaviour as a side
effect of Parkinson's medication.
Medical professionals and pharmaceutical companies have a
responsibility to raise awareness of these side effects and do all
they can to mitigate the risks and work towards medication with
less harmful side effects.
People with Parkinson's have a right to be told that impulsive
and compulsive behaviour is a possible side effect of their
Parkinson's medication right from the start of their treatment.
And people with Parkinson's should have their
medication reviewed and changed as necessary by their medical
professional.
Medical professionals should actively discuss impulsive and
compulsive behaviour with people with Parkinson's and their carers,
and involve them in all decisions.
Why we believe this
We know that impulsive and compulsive behaviour can have a
devastating impact on people's lives.
It can affect people in many different ways, including
binge eating, compulsive shopping or gambling, and hypersexuality
(when people find themselves preoccupied with sexual feelings and
thoughts).
People with Parkinson's may not associate the changes in their
behaviour with Parkinson's medication. They may be too embarrassed
to talk about this behaviour or deny that it's happening.
This is why it's important that specialists ask both the person
with Parkinson's and their carer about any changes in
behaviour.
What's the evidence?
Impulsive and compulsive behaviour is a known side effect
of some Parkinson's medication.
There are many estimates. But the most comprehensive study to
date shows that approximately 17% of people with Parkinson's taking
dopamine agonists and 7% of people with Parkinson's taking other
kinds of Parkinson's drugs are affected by impulsive and compulsive
behaviour.
Full policy statement
Parkinson's UK policy statement:
Impulsive and compulsive behaviour as a side effect of Parkinson's
medication (PDF, 52KB)
Find out more
To find out more, please contact
our Professional Engagement and Education team on
020 7932 1355 or icb@parkinsons.org.uk
- email
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