Our work to influence public policy
Benefits reform, the way care is funded, prescription charges
and stem cell research are just a few of the ways in which
public policy has a major impact on people with Parkinson's.
We take all appropriate opportunities to influence policy
for the benefit of people living with the condition.
Involving people with Parkinson's
Our policy statements are
developed on the basis of discussions with people with Parkinson's
and their carers, as well as health and social care professionals
and other experts.
We regularly hold focus groups on key topics, where people
can share their experiences and ideas.
A key forum is our Policy
Panel, which meets quarterly to help guide our position on
many different issues.
We also work with people with Parkinson's to bring their
direct experiences to the attention of policy makers, in order to
illustrate our messages as powerfully as possible.
Policy work in action
Improving policies towards the care, treatment and
welfare of people with Parkinson's means working in a number of
- Meeting with Ministers, politicians and civil servants to raise
key issues and influence policy appropriately and responding to
relevant government consultations
- Organising events in the UK Parliaments
and Assemblies and during the party conference season to raise
awareness and build support
- Working with professional associations and decision makers in
the NHS and social care to press for better standards of care
- Forming alliances with other organisations to push for
- Commissioning research to build the evidence base and help
influence policy direction
Current Parkinson's UK policy
Read our policy statements to see
what we believe about major public policy issues.
We need to be clear about what our opinion is on these issues,
as unless we have a clear policy, we can't begin to campaign for
Certain policy areas are a real focus of our attention at the
moment. These include:
If you are interested in contributing your views and experiences
on policy issues please email firstname.lastname@example.org
letting us know the areas you are particularly concerned about.