'Please mind the gap: Parkinson's disease services today'
The All Party
Parliamentary Group for Parkinson's
disease (APPG) has published a report in
July 2009 into access to health and social care services for people
affected by Parkinson's disease.
 The report -
Please mind the gap:
Parkinson's disease services today (PDF, 1.3MB) -
reveals major inequalities in access to information and
services for people with Parkinson's and their families.
The report is the result of a parliamentary Inquiry which has run
since November 2008.
Over 360 people with Parkinson's, their carers, individual
health and social care professionals and organisations helped shape
the report by submitting written evidence.
Terms of reference for the Inquiry
(PDF, 96KB)
Recommendations
The report includes recommendations to the Government on how
best to address the problems in access to health and social care
services which were highlighted throughout the Inquiry.
These include the need for:
- Improved leadership for Parkinson's and other neurological
conditions at a national level
- A 5 year review of the National Service Framework for long term
(neurological) conditions to measure its progress towards
implementation
- Support for better commissioning and planning of Parkinson's
services through the provision of evidence and guidance
- Strengthened workforce planning so that sufficient skilled
professionals are available to deliver high quality Parkinson's
care
Launch of Fair Care for Parkinson's campaign
 The Parkinson's Disease
Society has launched the Fair Care for
Parkinson's campaign in response to the APPG's report.
This campaign will challenge governments and administrations across
the UK to ensure all those affected by Parkinson's, including
carers, are getting access to the services they need.
Support the campaign
Help make sure all people affected by Parkinson's, wherever they
live in the UK, are given the care they deserve.
Get involved - take action
now
Parliamentarians can take action by:
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