Campaign to end the care crisis
We're campaigning for urgent reform of the care and
support system in England.
Older and disabled people and their families are going without
essential care and often face catastrophic care bills.
Contact your MP and tell them why we need urgent changes to the care system in England.
We're working with 50 other charities, as part of the Care and Support
Alliance, to call for reform of adult social care.
In May 2012 this open letter to the
Prime Minister (PDF, 37KB) was published on the front page
of the Daily Mail.
Our chief executive, Steve Ford was a co-signatory along with 84
other organisations, charities, council and NHS leadership and care
providers. It called on the Prime Minister to make it his personal
mission to reform social care.
Take action
Email your MP
Use our simple
online form to ask your MP to write to the Prime Minister and
demand urgent reform of the social care system.
It's vital that the Government includes the recommendations made
by the Dilnot Commission and the Law Commission when they publish
their social care plan. This had been expected in April 2012 but is
still to be published.
Tweet at Number 10
If you're on Twitter, why not tweet? Call
for urgent action on the care crisis by tweeting at the
Prime Minister - @Number10gov with the hashtags
#CareCantWait and #carecrisis
Sign Age UK's Care in Crisis petition
Our colleagues at Age UK have set up a
Care in Crisis petition. Can you help them reach 150,000
signatures?
Why campaign now?
The Government has promised an action plan for reform in spring 2012.
Two welcome reports have been published that could lead to a
much fairer system of social care in England.
The changes could lead to people paying less for their care and
greater entitlements to support.
The Dilnot Commission
report recommends a 'cap' on the cost that an individual will
pay for care and a more generous means test.
The Law
Commission's set of recommendations on adult social care law
include more rights for carers and national criteria to clarify the
law on what care and support people are entitled to.
The Government has also run a listening exercise - Caring for our
future. It is now considering the results of this exercise, and
has promised to publish an action plan for reform in spring 2012
based on this and the two commission reports.
Social care for people with Parkinson's
My dad's exhausted most of his savings paying for his care in a nursing home. He's been refused NHS 'continuing care'.
This is grossly unfair.
Daughter of someone with Parkinson's
The type of social care people with Parkinson's need can include:
- personal care and practical help in their own home
- aids and adaptations to help people keep independent
- supportive environments such as day centres
and residential care homes
Our 2008 members' survey
found, however, that many people with Parkinson's were
not getting the care and support they need.
There was also huge variation in services depending on
where people lived.
Since our survey, there have been more cuts to social care. This
means even more people are not getting help, and there are concerns
about the quality and cost of services.
Our work on social care policy
Read more about our work and submissions on these issues:
Other ways to get involved
The more that the issues are ignored, the fewer people
affected by Parkinson's will get support and the worse care
services will get. We need your help.
- Share your experience of social care services (good and bad)
with us. Email campaigns@parkinsons.org.uk
or call us on 020 7963 9307.
- Sign up to our Campaigns Network -
we'll keep you updated on our social care campaigning work.
- email
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