Campaign to end the care crisis
We're campaigning for urgent reform of the care and
support system in England.
Older and disabled people and their families are going without
essential care and often face catastrophic care bills.
We want disabled and older people and their families to be able to live without fear of what tomorrow might bring.
We're working with 50 other charities, as part of the Care and Support
Alliance, to call for reform of adult social care.
People with Parkinson's and carers
have been actively lobbying their MPs and meeting them in
parliament to get the message over about the crisis in our care
system. As a result of this pressure, in July 2012 the coalition
government finally produced proposals for reform.
In early 2013 it also announced it would introduce a cap on the
lifetime care costs of individuals - regardless of means.
And in May 2013, shortly after the Queen's Speech, a
Care Bill was published and is now going through
Not soon enough
The Care Bill has some good proposals to help people with
Parkinson's and their families. It introduces more rights for
carers, better information and advice, national eligibility
criteria so people with the same needs should get help wherever
they live, and a cap on the unlimited costs that some people can
face when paying for care.
It seems that both funding and legislation to make the reforms a
reality might not happen until the next parliament (2015). And the
cap will not be introduced to 2016. You can read more about what
the Care Bill might mean for people affected by Parkinson's and our
views on the detail on our social
care reform page.
Nor will there be enough money pumped into the system
now to stop the cycle of cuts and extra charges
that people are having to pay to keep the help they need.
We, along with many other charities, are considering what we can
do to end the care crisis sooner - people affected by Parkinson's
cannot wait the next few years for change.
Social care for people with Parkinson's
My dad's exhausted most of his savings paying for his care in a nursing home. He's been refused NHS 'continuing care'.
This is grossly unfair.
Daughter of someone with Parkinson's
The type of social care people with Parkinson's need can
- personal care and practical help in their own home
- aids and adaptations to help people keep independent
- supportive environments such as day centres
and residential care homes
Our 2008 members' survey
found, however, that many people with Parkinson's were
not getting the care and support they need.
There was also huge variation in services depending on
where people lived.
Since our survey, there have been more cuts to social care.
This means even more people are not getting help, and there are
concerns about the quality and cost of services.
Our work on social care policy
Read more about our work and submissions on these issues:
The more that reform is delayed, the fewer people affected
by Parkinson's will get support and the worse care services will
get. We need your help.
or call us on 020 7963 9307.
- Share your experience of social care services (good and bad)
- Sign up to our Campaigns Network -
we'll keep you updated on our social care campaigning work and next
steps to end the care crisis.