Tell us your views on social care and funding in England
21 September 2012
We need to make the Government understand that reform of social care is urgently needed, but to
help us do that, we need more personal stories from you that
show the extent of the problems some people are facing.
Why do we need your views?
In July, the Former Secretary of State for Health, Andrew
Lansley, announced the 'Caring
for our Future White Paper and draft Bill', suggesting that it
will bring about 'the biggest overhaul in care since 1948'.
We know that social care is really important to many people living with Parkinson's.
The White Paper follows months of campaigning by many
organisations including us and is based on an acceptance from
Government that the current care and support system in England is
The Government want to hear your views on the draft Bill and we
want to make sure that as many people living with Parkinson's are able to contribute to this
important piece of legislation.
What's in the White Paper and draft Bill?
The proposals include:
- If you're a person with Parkinson's in need of care, or a
carer of someone with Parkinson's,
however you fund your care, there will be more entitlements to help
from your council.
- A basic national threshold of care need over which anyone can
expect some help, rather than 150 different councils each deciding
what their own thresholds are.
- Reliable national information and advice to help people get the
right tailored care for each individual.
- If you are someone paying for your own care, there will be a
point when the state will step in and pay for your care costs
instead, although the amount you will have had to have spent has
not yet been decided.
However, a lot of the changes won't take place until 2015 at the
How can your story help?
We think the reform is much needed but would like to make it
happen sooner. And we are not convinced the Government has covered
everything that is wrong and needs changing about the care
We know that social care is really important to many people
living with Parkinson's but we also know many people don't really
know what it is, what they are entitled to, or are shocked to find
they may have to pay for help.
Social care are services designed to
improve your quality of life, assist your daily activities and keep
What we would like to find out from you
- Have you or a family member with Parkinson's had to sell their
home to pay for your/their residential care?
- Have you been charged for care services or adaptations in your
- Are you worried about not being eligible for care services
either now or in the future?
- Do you know where to go to find out more about social care
- What are your concerns about accessing care services?
- Have you experienced cuts to social care services in your area
and how have they affected you?
- Do you have concerns about the quality of care you have
received in your home or in residential care?
Get in touch
Please get in touch for an informal chat by calling 0844 225
3643 or emailing firstname.lastname@example.org.
All stories will be treated sensitively and your story will never
be used without prior consent.
You can also share your views on the draft
Care and Support Bill. The Government has opened this up for
public comment by 19 October 2012.
Our work on social care policy