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Members of our Policy Panel and ambassadors outside the Houses of Parliament

Parkinson's UK Policy Panel and ambassadors visit Westminster

10 February 2012

This week, members of our Policy Panel and ambassadors (pictured above) met with politicians at Westminster to discuss how best to influence law-makers and make an impact on behalf of people with Parkinson's.

We left with the impression that there are a lot of politicians on our side and actively supporting the Parkinson's community in Parliament.

Vince Curnow, Policy Panel member

Our Policy Panel are people affected by Parkinson's who help us form our official opinions on major public policy issues. These standpoints help to inform how we campaign for change.

Our ambassadors accompany our policy and campaigns staff to meetings to talk to politicians about the reality of being affected by Parkinson's.

Working together to influence Lords and MPs

During the day the group toured the Houses of Parliament. And they met with Baroness Gale and Steve Brine MP, who are chair and vice chair of the All-Party Parliamentary Group (APPG) for Parkinson's.

They discussed how we can work together to influence decisions made by Lords and MPs about issues that concern people affected by Parkinson's.

Both Baroness Gale and Steve Brine provided their insight and advice on what makes politicians tick, and how persistence and pressure can really pay off.

They also took away ideas for work that the APPG could focus on in the coming year.

Positive politics

Vince Curnow, a member of our Policy Panel, commented:

"We had such an interesting day.

The experiences and views of people affected by Parkinson's - such as our Policy Panel members and ambassadors - is central to our policy work.

"We left with the impression that there are a lot of politicians who are on our side and actively supporting the Parkinson's community in Parliament.

"It was refreshing that the day was all about positive politics."

People affected by Parkinson's at the centre of our work

Drew Lindon our parliamentary officer, adds:

"It's crucial that we continue to influence decisions being made at all levels of government.

"The Policy Panel and ambassadors are vitally important to make sure people affected by Parkinson's are at the centre of this work.

"We will continue to campaign to change attitudes and get better services for people affected by Parkinson's, and make the best use of our All-Party Parliamentary Group."

Find out more about our policy and campaigns work