Helpline: 0808 800 0303

Our helpline team with placard 'Call us'

Survey results in – helpline and information and support worker service

28 May 2012

Results from recent surveys of our information and support worker service and helpline have shown that these services continue to give people affected by Parkinson's the support and information they need.

I was given no other information after being diagnosed.

I felt as if I was alone with this, so ringing the helpline was the best thing I did.

Helpline user

We're committed to ensuring our information and support services are of a high quality and meet the needs of people affected by Parkinson's.

We regularly survey users of our:

We want to make sure that we're supporting people affected by Parkinson's in the right way for them. 

Image above: our helpline team

100% would recommend our helpline

The results of our helpline survey are overwhelmingly positive: 

  • 100% said they would recommend the helpline service to somebody else.
  • 100% rated the helpline service 'excellent' or 'good'.
  • 98% said they'd had no problems getting through to the helpline.
  • 95% said the helpline had provided them with information that was suitable to their needs.

100% found the information they received useful

Our information and support worker survey was also really positive:

  • 98% said they would recommend our information and support worker service to someone else (a 4% increase on the 2010 survey).
  • 97% rated the service 'excellent' or 'good'.
  • 100% rated the service 'satisfactory' or above.
  • 90% strongly agreed or slightly agreed that the information and support worker service made a positive difference to their life as someone affected by Parkinson's (an 8% increase on the 2010 survey).
  • 100% found the information they received useful.
  • 96% of those who needed a home visit received one in the required timescale.

Supporting people affected by Parkinson's

It was lovely to talk to someone and find out about Parkinson's and how it affects people in different ways.

Information and support worker service user

Laura Bowey, our head of information and support, comments:

"We are delighted that our helpline and information and support workers seem to giving people affected by Parkinson's the support and information they need.

"Through our range of information and support, we hope that people affected by the condition can access the information they need at the times when they feel ready.

"This includes our network of information and support workers, our local groups, helpline and information on our website."

"We don't want anyone to have to face Parkinson's alone and we'll continue to spread the word about the support we can offer to as many people as possible."