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Funding for Parkinson's research marks Dementia Awareness Week

21 May 2012

This week is Dementia Awareness Week (20-26 May 2012) and to mark the start of it, we're supporting 2 research projects in this area.

The research has been funded by the Lewy Body Society.

What is Parkinson's dementia?

We've teamed up with the Lewy Body Society to support 2 new research projects in dementia with Lewy bodies.

When someone has Parkinson's motor - or movement - symptoms for at least a year before experiencing dementia, this is known as Parkinson's dementia.

There is a similar condition called dementia with Lewy bodies. This is diagnosed when someone has the symptoms of dementia either before or at the same time as developing Parkinson's-like problems with movement.

In some cases, no motor symptoms may develop at all.

Unravelling the secrets of dementia

As part of our work, we've teamed up with the Lewy Body Society to support 2 new innovation grants to investigate this area.

Dr Jose Bras and his team at University College London will use a grant of £35,000 to analyse the DNA of 700 people with dementia with Lewy bodies. Jose hopes to spot subtle genetic changes that will help us understand the condition better.

Parkinson's UK Senior Research Fellow, Dr Tilo Kunath, is already using nerve cells made from stem cells to better understand Parkinson's and to test new drugs.

Now we've awarded Tilo's team at the University of Edinburgh an extra £18,172 to do the same for dementia with Lewy bodies.

A priority for Parkinson's UK

We're working to make sure that people with Parkinson's dementia and dementia with Lewy bodies get the best possible care and support.

We've recently appointed a senior professional engagement and partnership officer, Cecilia Yardley, jointly with the Lewy Body Society.

Cecilia's role is to co-ordinate our work around dementia.

She will build links between the 2 charities, and other organisations, to make sure that people with Parkinson's dementia and dementia with Lewy bodies get the best possible care and support.

Questions about dementia

We're also working with the James Lind Alliance to ensure that future research on dementia addresses the most important issues for the people affected.

The project aims to ensure that people with dementia, their carers and health and social care staff who support them have an opportunity to set the research agenda.

It's important that all types of dementia are included. So if you have an interest in Lewy Body Dementias (dementia with Lewy bodies and Parkinson's dementia) please take part in their short survey:

James Lind Alliance survey - setting priorities for dementia

The deadline for responses is 30 June.