How carers can help us find a cure for Parkinson's
22 June 2012
During Carers Week, we'd like to
highlight the ways that carers, as well as people with
Parkinson's, can get involved in our research - and in doing so
help us move towards a cure.
Contributing my ideas and thoughts to the Research Support Network is a way I can feel something positive can come out of what my husband had to go through.
We know that our research to find a cure for Parkinson's and improve treatments will not only
transform the lives of people with Parkinson's but also their loved
ones and those who provide care.
Our research work is all about a
future where no one has to live with the debilitating effects of
the condition.
Getting involved
We're building a new Research Support Network that is open to
anyone interested in Parkinson's research.
And we'd be delighted to hear from carers who would like to get
involved in this and plan our future lines of research.
This includes funding for research to help people with
Parkinson's and carers manage day-to-day life with the
condition.
Research includes uses for technology around the home,
alleviating sleep problems and minimising risk of falls.
If you'd like to find out more, contact Emily Hughes,
Research Support Network Manager on rsn@parkinsons.org.uk
or 020 7963 9376.
Why Mary is involved with research
Mary Shorter cared for her husband Peter who had
Parkinson's for 12 years. She joined the Research Support
Network in 2011.
Mary explains:
"Contributing my ideas and thoughts to the Research Support
Network is a way I can feel something positive can come out of what
my husband had to go through.
"Knowing that in the future others might be spared from the
effects of Parkinson's is what drives me forward.
"Once you stop being a carer, you can feel at a loss, but
getting involved has really given me something to focus on."
Find out more about our research
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