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Patient A's experience of deep brain stimulation

Patient A tells us about their experience of deep brain stimulation, a form of surgery for Parkinson's.

The person's name has been withheld to protect confidentiality.

First operation

Deep brain stimulation operation"I was asked to take part in a large-scale trial of deep brain stimulation. The first operation took 7 hours and I was fully conscious throughout.

"Firstly, they clamped my head so it could not move. I didn't realise how frightening this would be, and the effect of tightening up the bolts to hold the metal work in place echoed through my ears.

"They then gave me an MRI scan and took me to the theatre. They shaved part of my head and drilled 2 holes in my skull.

"The drill kept going until there was no resistance and then it automatically stopped (so the brain is not damaged). It took about 30 seconds to drill through my skull.

"Then they implanted an electrode on either side of my brain.

"Finding the right place to insert it takes between 10 minutes and an hour.

"While this was going on I was being continually asked my name and address and asked to make various movements with my hands, presumably to show that I was still compos mentis.

"After this, the electrode was positioned and clicked into place.

"The second side took a lot longer and I was beginning to get distressed. I was sweating, my back was aching and my legs felt very stiff.

"They finally found the right spot, closed up the holes, released the head vice and sent me back to the ward.

"Overnight, I was monitored at 4-hourly intervals to check my blood pressure and sugar levels.

"A nurse put support stockings on me to avoid thrombosis developing.

"As morning came, I felt much better and managed to struggle to the toilet on my own.

"The next day I dressed myself and went for a walk with my family in the local park in the afternoon.

Battery implanted

"2 days later I was put under a general anaesthetic so that they could implant a very expensive battery in my chest – I am told it costs £10,000.

"These are linked to the electrodes by leads. This operation only took 40 minutes. I left hospital 3 days later.

"After the operation I had to go back to hospital for adjustments, which are done by computer, using a stimulator placed over the battery in my chest.

"It can take up to 6 months before the settings are adjusted to the right level."

Update

Patient A has had a very successful operation, enjoys an improved quality of life, has much less dyskinesia (unwanted involuntary movements) and is currently taking less medication.

More surgery stories

You can read more on surgery for Parkinson's in our Surgery and Parkinson's booklet

The main forms of surgery for Parkinson's

Return to the surgical treatments of Parkinson's main page

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