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Welfare reform

What we believe

We believe that people with Parkinson's should receive financial help with the costs of their condition, including mobility costs, through the benefits system.

Benefits are an essential source of income for many people with Parkinson's.

Our members' survey showed that:

We believe that people with Parkinson's should receive financial help with the costs of their condition, including mobility costs, through the benefits system.

If people with Parkinson's are unable to work because of their condition, they should receive an income replacement benefit paid at a level that enables independence and social participation.

We are working to influence the benefits system to ensure that it takes into account the needs of people with a long term, fluctuating condition such as Parkinson's.

Read our policy statement on working age income replacement benefits such as Employment and Support Allowance (ESA).

We're currently developing a further policy statement on benefits such as Disability Living Allowance (DLA).

Current consultations, submissions and reports

We respond to government and other consultations likely to affect people with Parkinson's.

Read some of our responses below. These include the important proposals for Disability Living Allowance, and reviews of the appropriateness of the new 'fitness to work' tests for Employment and Support Allowance.

We are a member of the Disability Benefits Consortium, a coalition bringing together interested organisations which campaigns on welfare benefits as they relate to people with disabilities. We actively contribute to the joint lobbying and briefings undertaken by the consortium.

Welfare reform general

The welfare system is subject to constant reform. The Welfare Reform Bill proposes to simplify the benefits system, particularly for people of working age, through the introduction of universal credit, as well as changes to Disability Living Allowance and Employment and Support Allowance.

Disability Living Allowance

Reform to Disability Living Allowance (DLA) is included in the Welfare Reform Bill. DLA will be replaced by a new benefit called Personal Independence Payment or PIP. We have many concerns about the proposals to reassess people with Parkinson's of working age for PIP. 

Please note: following a major campaign, the Government announced in December 2011 that it would take out the proposal to remove the mobility element of DLA from people in care homes from the Welfare Reform Bill. This is good news for people with Parkinson's.

Have your say on the thresholds for eligibility for PIP

The Government has now published the assessment thresholds for PIP for consultation. This shows the 'scores' that people need to be eligible for PIP. The consultation is open until 30 April 2012. 

We will also be responding. If you would like to share your views for our Parkinson's UK response, please contact us on campaigns@parkinsons.org.uk or phone 020 7963 9307

Other responses

Employment and Support Allowance

Many people, including those with Parkinson's, say the Work Capability Assessment doesn't fully recognise the impact of their condition or disability.

Applications for Employment and Support Allowance (ESA) involve the person being assessed for eligibility.

Many people, including those with Parkinson's, say the assessment - called the Work Capability Assessment - doesn't fully recognise the impact of their condition or disability and they are wrongly told they are ineligible and 'fit to work'.

Their views were fully supported by an independent review by Professor Malcolm Harrington of the Work Capability Assessment (PDF file) that was published in November 2010.

In the Government's response to the Work Capability Assessment review (PDF file) the Government accepted all Professor Harrington's recommendations for improvements. At the same time, though, the Government made some earlier 'internal review' changes that will make it more difficult to become eligible for ESA.

There was a further review to see whether the first year of Harrington changes has improved the process. An independent review of the Work Capability Assessment - year two (PDF file) has now been published.

As part of the ongoing review of the Work Capability Assessment, Professor Harrington asked us and 5 other charities to provide advice on how fluctuating conditions could be better reflected in the assessment. And we were also asked to provide recommendations on how the system could change. This report is now with the Government for consideration.

Advice, information and support

For information about benefits and other support available, we have a range of free publications about rights and benefits.

Our online discussion forum includes a forum on employment and benefits. You can share your views and experiences about employment benefits issues with other people with Parkinson's.

Find out more

  • Read more about how you can get involved with our Disability benefits campaign.
  • Contact our Policy and Campaigns team on campaigns@parkinsons.org.uk or phone 020 7963 9307 with your comments and views on welfare reform to help us with our policy work, with government and in parliament.