Improving support for carers
Why is this important?
Improving support for carers is a key policy priority for the
Parkinson's Disease Society (PDS). Carers of people with
Parkinson's can face significant challenges getting the support and
information they need.
Our
2008 members' survey found that only a third of carers
were aware of their right to a carer's assessment and only 11% were
getting help from their local social services.
Take action
Sign the Carers Poverty Charter
Carers UK has launched a campaign to reform carers' benefits and
end carer poverty and is calling for people to sign up to
support the Carers Poverty Charter. This will be presented to
government and political parties later this year.
Add your support to the Carers Poverty Charter
Complete a King's College London survey on respite breaks
Dr David Williams at King's College London has been commissioned
by the Department of Health to find out about the support carers
need from services offering respite breaks.
If you care for an adult aged 18 to 65 years old with
Parkinson's, you can help by completing a survey about your views
and experience. The survey takes approximately 30 to 40 minutes to
complete.
For more details:
What the PDS is doing
Responding to government consultations
The Parkinson's Disease Society responds to government and other
consultations likely to affect carers.
Further information
For information about the support currently available to carers
please visit the advice section of this
website, or read our publication The Carer's Guide
Have your say
The PDS website forum includes a
Carers, friends and family forum, a chance for you to talk to
other carers about your experiences and share your views about the
issues that matter to you.
Contact us
If you are a carer and would like to make your views known, please
email campaigns@parkinsons.org.uk
or write to:
Social Policy and Campaigns team
Parkinson's Disease Society
215 Vauxhall Bridge Road
London SW1V 1EJ
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